Friday, 29 January 2010


Well I'm home my CRP had started to come down and my temperature. The doctors still have no idea what caused it but I definatley had some sort of infection or virus. But all is well now and I'm looking forward to going to watch Britans got talent auditions tomorrow. thanks to robbie for updating my blog while I was in hospital.
Also on the transplant part of things, the transplant consultant rang and said he would like to carry on goign ahead but I need to go back in for another assesment and have more tests and would try and get me in asap but at the moment people who where reffered in september are being given dates for march. But they are trying to fit me when they have a space. It's all a waiting game!

that's all for now folks!

Sunday, 24 January 2010

Ayesha Needs Some Positive Thoughts

Hi Everyone.

It's Robbie. I just wanted to update you all on how Ayesha is doing at the moment.

She was taken into hospital on the 23rd of January. She woke up with a temperature of 40 and she hadn't been able to stop vomiting.

She was given Paracetamol, Fluids and she was put on Gentamycin and Ceftazidime. Ayesha is certain that is is not her chest as her SATs and breathing are normal. She thinks it might be a stomach bug.

Her main concern is being able to go to Britain's Got Talent, Please send her positive thoughts and prayers. She really doesn't want to miss BGT.

Today she is still waiting for bloods to come back but she is certain it is not her chest. I will inform you all of any test results ASAP.

Her temperature keeps shooting up after 4 hours post paracetamol. She is still vomiting non stop and she has not managed to eat or drink in the past two days as she cannot stop vomiting. She was given Ondansetron which has had no effect. She was then given Cyclizine IV and that has seems to be having some affect but she is getting blury vision as a result.

Her Cannula has now became unusable, this cannula took 3 attempts to get in and was accessed in the back of her wrist. She is now waiting for a Doctor to put another one in.

Ayesha really needs your thoughts and prayers now. Please send her some positive thoughts. You can leave any messages you have for her in the comments section on this blog post or you can send her a message on facebook by clicking here.

Get well soon Ayesha x

Monday, 4 January 2010

Transplant clinic

Well I have just been to transplant clinic, Unfortunately I am not listed... yet but I didn't expect to be, we discussed the things that posed added problems with my underlying condtion, they transplant team are willing to take a risk they said even if they are 80% sure that it is the right way to go they will take that risk if I am willing to. They said they obviously have some hope it could work out and could be listed as otherwise they wouldn't be assesing me. one the things they are worried about and they no means of finding out is will my wegener's granulomatosis attack my new lungs and in how long a week, a year 20 years but thats gamble they are willing to take again if I want to. The other major concern is, is the airway where they sew the new lungs on damaged if so then really there is no point in transplant as the new lungs won't heal and will just pull away which is the main cause of rejection in early days. They were also a tad confused at the damage in my lungs as it my disease doesn't usually present like that also what causes these sudden dips in health when it isnt caused my infection. I hope all this makes sense and no doubt it has lots of mistakes.
I would like to congratulate rachael wakefield on her media work recently which has so far resulted in 3000 people signing the organ donation register she literally is a lifesaver and can proudly say I am glad to know her and be her friend
I would also like to thank Rob skinner for being such a great friend and being there for me when I needed someone to talk to.
I had a fabulous christmas at home with my family, I managed to get home on christmas eve. I spent the day with my cousins and the evening with the rest of my cousins and aunts and uncles and grandparents it was lovely having three generations in one room. New year was good, I spent it talking to a very good friend on msn and watching fireworks from the window. I hope you all had a fabulous Christmas and New year.
Take care all xxx